Fibromyalgia – What It’s Like Living With It

Fibromyalgia - What it's like for me living with itLiving with Fibromyalgia is different for every sufferer. But sharing stories and experiences can help us all, so here’s a little bit of mine. If you want to find out about specific components of Fibro, then the full post list can be found here.

What is Fibromyalgia?

Fibromyalgia is defined by Google as

a rheumatic condition characterized by muscular or musculoskeletal pain with stiffness and localized tenderness at specific points on the body.

Being Diagnosed with Fibromyalgia

I was finally diagnosed with Fibromyalgia when I was in my early twenties, after suffering with, what was then, predominantly, head and neck pain, since I was thirteen.

I was told that it is usually diagnosed by eliminating most/all other possible conditions. I guess this is why it took about ten years to get a helpful diagnosis. I had tried acupuncture, massage, chiropractic, osteopathy, homeopathy and goodness knows what else, in trying to manage it. But the plain fact was: nothing worked. And if anything the condition was worsening.

So when I finally got diagnosed, despite not being a fan of ‘labels’, it was a relief to get an explanation.

What It Is Like Living with Fibromyalgia Now

Now, every day I have some level of pain or other. The ‘localised’ description isn’t far wrong – though it is still predominantly in my neck and shoulders, I also get pain in my face from time-to-time and my the joint where my collarbones join my shoulders often really hurts.

I have also had to battle with really bad Fibro Fog – a lack of clarity in thought processes, chronic fatigue (coupled with an inability to sleep well). And over the last few years I have had an increase in hand pain, which sucks when I work – and play – on computers. And my shoulder pain can be so bad, trying to make me relax would be as useful as massaging a droid!

Since originally drafting this page, I have had to give up a ‘normal job’ completely. Instead I focus on home life, building this blog, and streaming.

The Upsides

But I have fantastic support from my other half, a few folks from Church and the friendship I have found via the Twitter community. This means I can recommend trying the following hashtags to find others fighting similar battles:

  • #SpoonieChat
  • #SpoonieProblems
  • #ChronicLife

There are others, but that’s a start. Going forward I will add Fibro-related blog posts to this site. But I won’t put myself under pressure to do so as that causes stress, which causes pain, so… yeah.

May the Spoons Be Ever In Your Favour.

More Fibromyalgia Content