Living with Fibromyalgia is different for every sufferer. But sharing stories and experiences can help us all.
What is Fibromyalgia?
Fibromyalgia is defined by Google as
a rheumatic condition characterized by muscular or musculoskeletal pain with stiffness and localized tenderness at specific points on the body.
Being Diagnosed with Fibromyalgia
I was finally diagnosed with Fibromyalgia when I was in my early twenties, after suffering with, what was then, predominantly, head and neck pain, since I was thirteen.
I was told that it is usually diagnosed by eliminating most/all other possible conditions. I guess this is why it took about ten years to get a helpful diagnosis. I had tried acupuncture, massage, chiropractic, osteopathy, homeopathy and goodness knows what else, in trying to manage it. But the plain fact was: nothing worked. And if anything the conditioning was worsening.
So when I finally got diagnosed, despite not being a fan of ‘labels’, it was a relief to get an explanation.
What It Is Like Living with Fibro Now
Now, every day I have some level of pain or other. The ‘localised’ description isn’t far wrong – though it is still predominantly in my neck and shoulders, as I type this I have a ‘pain spot’ on my cheekbones and I had pains shooting into my head from the right side of my neck.
I have had to battle this year with really bad ‘Fibro Fog’ – a lack of clarity in thought processes, chronic fatigue (coupled with an inability to sleep well). And 2015 for me has seen an increase in hand pain, which sucks when I work – and play – on computers. And my shoulder pain can be so bad, trying to make me relax would be as useful as massaging a droid!
I struggle to get out of bed every morning for work, partly due to the Fibro and partly due to the effects of amitriptyline. But I count my blessings I can still work – I’ll write more about that particular battle later.
But I have fantastic support from my other half, a few folks from Church and the friendship I have found via the Twitter community. This means I can recommend trying the following hashtags to find others fighting similar battles:
There are others, but that’s a start. Going forward I will add Fibro-related blog posts to this site. But I won’t put myself under pressure to do so as that causes stress, which causes pain, so… yeah.
May the Spoons Be Ever In Your Favour.