According to my ‘main’ Twitter account, I have been using the social media platform since 2010 – that’s a long time. I use that account mostly for work, for connecting with friends, family and people in my local area. I love this micro-blogging platform.
Reason 1: The ‘need’ to not lose followers
As I use Twitter for business, it’s pretty important’ to me to keep as many followers as possible. Sadly, I have noticed that when I tweet about struggling with Fibromyalgia, or how I am feeling on a particular day, I lose followers. That’s not great for business. It’s also not necessarily a great reflection on how much people value me, if I am honest.
I come as a whole package, pains, fog, work skills – everything. But that doesn’t always sit well with followers.
Wanting to Connect With Fellow Spoonies
‘Spoonie’ was a phrase coined by But You Don’t Look Sick. It’s a measure of your reduced capacity when fighting a chronic condition like Fibromyalgia.
I wanted an outlet, a way to vent about how I feel. But also to feel connected to a community which understood the daily battle, the epic amount of meds you take each day and the understanding of reduced working capacity. And having an anonymous twitter account really helped me with that.
A Safe Place to Vent
I wanted somewhere to complain, to not longer internalise how I feel and my social profile has helped with that. I also connect with SWTOR gamers, which is great – and also wouldn’t suit my ‘usual’ Twitter profile. So thank you to you all for letting me yell about my health – it’s really appreciated!
I am nearly on the verge of 950 followers at the date of writing this post. That is very humbling. I never expected anyone to follow along. I merely wanted a safe place to yell, without it being passed onto clients, extended family or anyone else. I know that if you follow me, you don’t mind all that. And that makes me very grateful.
May the Force Be With You. May It Make You Strong.